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AGENDA: Tuesday, August 19, 2008
Morning Day 1: HIPAA Summit/Privacy Symposium Joint Plenary Session

7:00 a.m. Registration in Memorial Hall Transept, Harvard University
8:00 a.m. Welcome and Introduction to Morning of Day 1: Privacy in Transition: What's Next?

Alan F. Westin, PhD
Principal, Privacy Consulting Group, Professor Emeritus of Public Law and Government, Columbia University, Washington, DC (Co chair)
8:30 a.m. A Socratic Dialogue: Why Are We Here? What Do We Want to Learn?

Arthur Miller, Esq.
Professor, New York University Law School, Former Bruce Bromley Professor of Law, Harvard Law School, New York, NY
9:00 a.m. Keynote Address

Cliff Stearns (R - FL)
Ranking Republican on the Telecommunications and the Internet Subcommittee, United States House of Representatives, Washington, DC
9:30 a.m. Transformational Technologies and the Changing Privacy Landscape

Brian Tretick
Executive Director, IT Enablement Center, Ernst & Young LLP, McLean, VA
10:00 a.m. Roundtable on Privacy in Transition: Healthcare Case Study - Is Privacy Policy Working in the Healthcare Sector?

William R. Braithwaite, MD, PhD
Chief Medical Officer, Anakam, Inc., Former Senior Vice President, and Chief Medical Officer, eHealth Initiative, Former Senior Advisor on Health Information Policy, Department of Health and Human Services, Washington, DC

Jodi G. Daniel, JD, MPH
Director, Office of Policy and Research, Office of the National Coordinator for Health Information Technology, Department of Health and Human Services, Washington, DC

Karen G. Grant, RHIA
Corporate Director, Health Information Services, and Chief Privacy Officer, Partners Healthcare System, Boston, MA

Deborah C. Peel, MD
Psychiatrist and Medical Privacy Expert, Founder and Chair, Patient Privacy Rights, and the Coalition for Patient Privacy, HIPAA Summit Distinguished Service Award Winner, Austin, TX

Michael Phillips
Health Insurance Specialist, Office of E-Health Standards and Services, Centers for Medicare and Medicaid Services, United States Department of Health and Human Services, Washington, DC

Linda Sanches
Senior Advisor, HIPAA Privacy Outreach & Training, Office for Civil Rights, Department of Health and Human Services, Washington, DC

Gerry Hinkley, Esq.
Partner and Chair, Health Information Technology Practice, Davis Wright Tremaine, Member, HIMSS HIE Steering Committee, CCHIT Privacy Expert Panel and, Connecting for Health Policy Subcommittee, San Francisco, CA (Moderator)
11:00 a.m. Break
11:15 a.m. Privacy and Technology: Privacy Prospects in the New Online Personal Health Record World

Matthew A. Kaminer, Esq.
Vice-President, Assistant General Counsel, and Chief Privacy Officer, WebMD Health Corp, New York, NY

Patrick McMahon
Senior Counsel, Health Solutions Group, Microsoft Corporation, Redmond, WA

Eric Sachs
Product Manager, Google Security, Mountain View, CA

Ann Waldo, Esq.
Principal, Ann Waldo, PLLC, Privacy Counsel, Dossia, Washington DC

Alan F. Westin, PhD
Principal, Privacy Consulting Group, Professor Emeritus of Public Law and Government, Columbia University, Washington, DC (Moderator)
12:00 p.m. Privacy and Technology: Giving Patients Control Over Uses of their Health Information

Richard S. Dick, PhD
Founder, You Take Control, Inc., Co author, The Computer-based Patient Record: An Essential Technology for Healthcare, Alpine, UT

Robert H. Shelton
Founder and Chief Executive Officer, Private Access, Aliso Viejo, CA

Alan F. Westin, PhD
Principal, Privacy Consulting Group, Professor Emeritus of Public Law and Government, Columbia University, Washington, DC (Moderator)
12:30 p.m. Networking Lunch at Harvard Faculty Club


AGENDA: Tuesday, August 19, 2008
Afternoon Day 1

HIPAA SUMMIT
Plenary Session
1:45 p.m. Introduction to Afternoon of Day II

Alan S. Goldberg, JD, LLM
Attorney & Counsellor at Law, Adjunct Professor of Law, Suffolk University, and University of Maryland, Past President and Fellow, American Health Lawyers Association, Washington, DC (Co chair)
2:00 p.m. Transactions, Code Sets and Identifiers (NPI) Update

James D. Whicker, CPAM
Director of EDI, Revenue Cycle, Intermountain Healthcare, Chair, WEDI, Salt Lake City, UT
2:45 p.m. OCR Update on HIPAA Privacy Regulation

Linda Sanches
Senior Advisor, HIPAA Privacy Outreach & Training, Office for Civil Rights, Department of Health and Human Services, Washington, DC
3:30 p.m. CMS Update on HIPAA Security Regulation

Michael Phillips
Health Insurance Specialist, Office of E-Health Standards and Services, Centers for Medicare and Medicaid Services, United States Department of Health and Human Services, Washington, DC
4:15 p.m. Break
4:30 p.m. Lessons Learned from the Piedmont Healthcare HIPAA Security Audit

Cliff Baker
Director, Health Information Technology, PricewaterhouseCoopers, Atlanta, GA

Nadia Fahim-Koster, MBA, CHPS, CISSP
Information Security Director, Piedmont Healthcare, Atlanta, GA

Ken Schwartz
Vice President of Compliance, Piedmont Healthcare, Inc., Atlanta, GA
5:30 p.m. The Role of the National Committee on Vital and Health Statistics in Healthcare Privacy and Security Policy

Harry L. Reynolds, Jr.
Vice President of HIPAA and Information Compliance Officer, Blue Cross & Blue Shield of North Carolina, Inc., Chair Elect, National Committee on Vital and Health Statistics Chair, Committee on Operating Rules for Information Exchange (CORE) of CAQH, Durham, NC
6:00 p.m. Healthcare Privacy: The Perspective of a Privacy Advocate

Deborah C. Peel, MD
Psychiatrist and Medical Privacy Expert, Founder and Chair, Patient Privacy Rights, and the Coalition for Patient Privacy, HIPAA Summit Distinguished Service Award Winner, Austin, TX

Deven McGraw, Esq.
Director, Health Privacy Project, Center for Democracy & Technology, Co chair, Confidentiality, Privacy and Security Workgroup, American Health Information Community, Former Chief Operating Officer, National Partnership for Women & Families, Washington, DC
6:45 p.m. Adjournment and Opening Networking Reception at Annenberg Hall
PRIVACY SYMPOSIUM
Plenary Session: Privacy in Transition
1:45 p.m. Introduction and Reflections The Future of Privacy Breaches: Report on the Privacy Breach Index (PBI) Survey

Lawrence A. Ponemon, PhD
Chairman and Founder, Ponemon Institute, Adjunct Professor of Ethics and Privacy, CIO Institute, Carnegie Mellon University, Traverse City, MI (Co chair)
2:15 p.m. A New Framework for Understanding Privacy

Daniel J. Solove, Esq.
Associate Professor of Law, George Washington University Law School, Author, Understanding Privacy; Information Privacy Law; The Future of Reputation: Gossip, Rumor, and Privacy on the Internet; and The Digital Person: Technology and Privacy in the Information Age, Washington, DC
2:45 p.m. U.S.-EU Safe Harbor Program: New Developments in Data Transfers and BCRs

Joan S. Antokol, Esq.
Partner, Baker & Daniels, Former, Vice President, and the Global Head of Privacy, Novartis, Indianapolis, IN

Damon C. Greer
Director, US-EU Safe Harbor Framework, Office of Technology and E-Commerce, International Trade Administration, Department of Commerce, Washington, DC
3:15 p.m. The Future of Privacy and Behavioral Marketing

Fran Maier, MBA
Executive Director and President, TRUSTe, San Francisco, CA

Martha Rogers, PhD
Partner, Peppers & Rogers Group, Author, The One to One Future, Enterprise One to One and Managing Customer Relationships, Bowling Green, OH

Alan F. Westin, PhD
Principal, Privacy Consulting Group, Professor Emeritus of Public Law and Government, Columbia University, Washington, DC (Moderator)
4:00 p.m. Break
4:30 p.m. Panel Discussion of Emerging Privacy Challenges: Social Networking

Susan B. Barnes, MFA, PhD
Professor, Department of Communication, Associate Director, Lab for Social Computing, Rochester Institute of Technology, Author, Online Connections: Internet Interpersonal Relationships and Computer-Mediated Communication: Human to Human Communication Across the Internet, Rochester, NY

Chris Kelly, MA, JD
Chief Privacy Officer and Head of Global Public Policy, Facebook, Former Chief Privacy Officer, Excite@Home, Kendara and Spoke Software, Palo Alto, CA

Tracy Mitrano, JD, PhD
Director of IT Policy, Cornell University, Director, Institute for Computer Policy and Law Program, Cornell University, Author, A Wider World: Youth, Privacy, and Social Networking Technologies, EDUCAUSE Review, Ithaca, NY

Bruce Johnson, Esq.
Partner and Chair, Privacy Law Group, Davis Wright Tremaine, Seattle, WA (Moderator)
5:30 p.m. Panel Discussion of Emerging Privacy Challenges: Privacy and Civil Liberties

Jim Dempsey, Esq.
Vice President for Public Policy, Center for Democracy & Technology, Former Deputy Director, Center for National Security Studies, Former Assistant Counsel, Judiciary Subcommittee on Civil and Constitutional Rights, United States House of Representatives, Author, Communications Privacy in the Digital Age: Revitalizing The Federal Wiretap Laws To Enhance Privacy, Co author, Terrorism & the Constitution: Sacrificing Civil Liberties in the Name of National Security, San Francisco, CA

Jameel Jaffer, Esq.
Director, National Security Project, American Civil Liberties Union, New York, NY

Alan Charles Raul, Esq.
Partner, Sidley Austin LLP, Vice Chairman, Privacy and Civil Liberties Oversight Board, Former Associate Counsel to President Ronald Reagan, Washington, DC

Robert Ellis Smith, Esq.
Publisher, Privacy Journal, Author, Privacy: How to Protect What's Left of It and Ben Franklin's Web Site: Privacy and Curiosity from Plymouth Rock to the Internet, Providence, RI (Moderator)
6:30 p.m. Adjournment and Opening Networking Reception at Annenberg Hall




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